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Everyone got there and made a big show of turning off their pagers and everything so it would be all about me, and then Dr. Maria said, “So the great news is that Phalanxifor continues to control your tumor growth, but obviously we’re still seeing serious problems with fluid accumulation. So the question is, how should we proceed?”
And then she just looked at me, like she was waiting for an answer. “Um,” I said, “I feel like I am not the most qualified person in the room to answer that question?”
She smiled. “Right, I was waiting for Dr. Simons. Dr. Simons?” He was another cancer doctor of some kind.
“Well, we know from other patients that most tumors eventually evolve a way to grow in spite of Phalanxifor, but if that were the case, we’d see tumor growth on the scans, which we don’t see. So it’s not that yet.”
Yet, I thought.
Dr. Simons tapped at the table with his forefinger. “The thought around here is that it’s possible the Phalanxifor is worsening the edema, but we’d face far more serious problems if we discontinued its use.”
Dr. Maria added, “We don’t really understand the long-term effects of Phalanxifor. Very few people have been on it as long as you have.”
“So we’re gonna do nothing?”
“We’re going to stay the course,” Dr. Maria said, “but we’ll need to do more to keep that edema from building up.” I felt kind of sick for some reason, like I was going to throw up. I hated Cancer Team Meetings in general, but I hated this one in particular. “Your cancer is not going away, Hazel. But we’ve seen people live with your level of tumor penetration for a long time.” (I did not ask what constituted a long time. I’d made that mistake before.) “I know that coming out of the ICU, it doesn’t feel this way, but this fluid is, at least for the time being, manageable.”
“Can’t I just get like a lung transplant or something?” I asked.
Dr. Maria’s lips shrank into her mouth. “You would not be considered a strong candidate for a transplant, unfortunately,” she said. I understood: No use wasting good lungs on a hopeless case. I nodded, trying not to look like that comment hurt me. My dad started crying a little. I didn’t look over at him, but no one said anything for a long time, so his hiccuping cry was the only sound in the room.
